Por noveno año consecutivo se conmemoró este 21 de marzo el Día Mundial del Síndrome de Down. La estadística mundial refiere que nace un bebé Down por cada 800 partos.

El grupo de APRID que participó de la conmemoración.
El grupo de APRID que participó de la conmemoración.

 

“Cada año la voz de las personas con este trastorno y los que viven y trabajan con ellos, se hace más fuerte pero todavía hay mucho más que podemos hacer”, señala la organización benéfica Down Syndrome International. La fecha busca sensibilizar a la sociedad para que reconozca a las personas con Síndrome de Down como seres que tienen muchas fortalezas y también mucho coraje para superar sus debilidades.

En San Rafael, la escuela APRID junto a otras entidades del medio, conmemoraron en la Plaza San Martín esta fecha, donde los alumnos expusieron trabajos realizados por ellos en los diferentes talleres, mostraron sus aprendizajes en danzas y junto a familiares y vecinos, compartieron una merienda durante la jornada de concientización.

«Se sabe que el síndrome no es una enfermedad sino una alteración cromosómica. Tampoco es una condición que se hereda, y puede aparecer en cualquier raza o estatus social y en embarazos de mujeres mayores de 35 años, como en madres más jóvenes. La estadística mundial refiere que nace un bebé Down por cada 800 partos», señaló la entidad sanrafaelina.

El Día Mundial del Síndrome de Down recuerda la triplicación del cromosoma 21, que es la alteración genética que mayormente se observa en este grupo.

Debe su nombre al médico británico John Langdon Haydon Down, quien describió en 1866 las características clínicas de la condición. En 1958, el genetista francés Jérôme Lejeune descubrió que  una alteración cromosómica del par 21 la producía.

En Argentina una de las instituciones más representativas en la lucha por los derechos de las personas con síndrome Down es ASDRA – Asociación Síndrome de Down de la República Argentina- es una asociación civil sin fines de lucro y de bien público, fundada por un grupo de padres de personas con síndrome de Down el 8 de agosto de 1988.

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